As a cleft lip and palate patient I have had experience with a whole variety of cleft-related situations. I’m very fortunate to have used these experiences to support, educate and empower others. Having been a patient since I was born has not only shaped my personal life, but also shaped my academic interests, where I specialised in medical communication whilst studying at university. I explored the linguistic challenges of doctor-patient communication and investigated ways to improve patient understanding and empowerment.
From there, I decided to write this website to try and help people understand what it’s like for a cleft lip and palate patient, both physically and emotionally. I am delighted that this has led to so many amazing opportunities to speak publicly about my experiences and ways to improve patient empowerment. From speaking at professional development days for world-renowned cleft specialists, giving awareness-raising interviews to even guest blogging for a cleft website in America!
Please click the links below to find out more information, as well as a few examples of my cleft talks. Please feel free to contact me if you’d like to chat about how I might be able to help you with an upcoming event or interview: firstname.lastname@example.org.
Here in the UK we have nine centres of excellence. These centres are for the more specialised, ‘one-off’ parts of cleft treatment, such as surgery. The centres are supported by local hospitals, which provide local (and more convenient) care for the more on-going parts of treatment, such as orthodontics. I have had the privilege of offering a patient perspective at regional and local professional development days for nurses, cleft surgeons, orthodontic teams, speech and language therapists, psychologists and medical students. Please click the links below for more information.
Cleft Net East:
Adolescent Psychology Support Group
Cleft Net East:
Regional Study Day
Cleft Lip and Palate Association:
CLAPA Adult Conference
Holiday Inn, Camden Lock
A Team Approach to Cleft Care
Luton and Dunstable University Hospital
As a cleft lip and palate patient, I am very passionate about ways to improve patient empowerment and education. I am very lucky to have given my views on a variety of cleft-related topics, which will hopefully debunk some of the myths surrounding cleft care and educate those who really need it.
Talking about my cleft experiences online has opened up so many opportunities, one of which is the chance to connect to people all over the world. I am delighted that I have been asked to create content and share my story with a much wider community. I love being a part of the wider cleft conversation that can help offer new perspectives to cleft care and patient empowerment.